Fibromyalgia manifests itself in different ways for different patients, but most can agree that all the symptoms are life-altering. Itās not always clear how (or if) they can be treated, and the physical challenges can all too easily turn into emotional challenges as the things you used to do become more and more difficult.
We asked our Mighty community with fibromyalgia which symptoms they consider the worst and how they cope with them. If youāre experiencing these difficult symptoms as well, check out the strategies they use, and donāt forget that you arenāt alone in dealing with the hardships of fibromyalgia.
Hereās what the community told us:
1. āNever-ending fatigue. Iām still trying to figure out what helps, but so far, certain homeopathic medicines are working. My online support group helps tremendously! And thereās always Netflix. Cuddles from my cats help, too!ā
2. āWhen I feel like Iām walking through quicksand. The only thing that helps is to take a break for a day and rest.ā
3. āTo me, the worst part of fibro isnāt the pain/stiffness or the constant fatigue, itās my non-existent social life and constantly feeling alone/misunderstood. Even on the awful days, I always find some way to cope or I just lay in bed and whine to my pets. But itās hard to find a way to ācopeā with the loneliness and the depression that follows it.ā
4. āThe worst is the joint stiffness and joint pain I get, nausea, and being tired all day and then not being able to sleep at night. Iām a huge fan of the heating pad, and keeping hydrated, and taking my days one day at a time.ā
5. āThe whole body stiffness as if youāve worked every bone in your body the day before. No way to deal with the pain, but working out does helpā¦. lessens some of the stiffness. I really notice it more when I donāt do cardio. I tell my family I work out to lose weight, which is true, but itās more so to help with the stiffness.ā
6. āWhen something always hurts, itās hard to focus. When you never get good sleep, getting through a workday without a nap is incredibly difficult. I use essential oils to help with both. I make sure I get the best sleep that I can and rest when I can.ā
Click Here to Visit the Store and find Much More….
7. āPain in every part of my body! Some days it even hurts to breathe. I pamper myself on those days and do only what is necessary. I save a book I know I will get lost in reading, have a few naps, and try to relax my tight muscles to minimize the pain. I cuddle and pet my dogs a lot, too. I live by myself in the Minnesota up-north woods far away from the noise and stress of living in a city. The quiet and solitude help keep me relaxed.ā
8. āFor me itās the cognitive issues. I can hide the pain, but when I canāt form words or get lost in familiar places and see the look of pity on the faces of others, I want to cry. I used to be confident and outgoing. Now I just want to hide away.ā
9. āWorst symptoms for me are the random hand twitches. I deal with them by making jokes.ā
10. āNot having an internal thermostat. Iām rarely just a comfortable temp. Always hot or freezing! I try to dress with layers and know where fans and fresh air are when possible!ā
11. āWaking up achy like I hiked 20 miles, feeling like I didnāt sleep at all, and feeling like my head is stuck in the fog. It feels like Iām jet-lagged all the time, walking through quicksand with the body aches of the flu⦠I try to have a positive attitude about the good parts of my life and manage the best I can.ā
12. āThe inconsistency. One day you may be feeling relatively good and the next day you are unable to get out of bed. Fibro doesnāt care if you have things to do that day; if it is a bad pain day, it is a bad pain day.ā
13. āThe worst symptom would have to be my loss of self. I worked hard for the life I had. I was happy. But now I feel like such a burden. No matter how positive I am or how much I smile, I struggle with the constant removal of independence. Iām not sure how to love or even like what Iāve become. I do have amazing support from my partner, and I appreciate it more than he will ever know. Time together will make a difference. So will finding new happy moments and places.ā
14. āThe worst symptom is a specific kind of pain; it feels as though Iām being stabbed, in random order, with a red-hot electrified knife all over my body. Thereās no relief. All I can do is rub my feet/hands/legs/arms, curl up in a ball and wait for it to pass.ā
15. āI have good days and bad days, but on the bad days it feels like every joint in my body is screaming. On those days I take a nice long Epson salt bath with bubbles and calm music; it always helps.ā
16. āFibromyalgia flare-ups are the worst. The pain is unbearable and it is felt in every joint, every muscle, every nerve. The fatigue is overwhelming, and sleep is often kept to a minimum since the pain is so severe. Flare-ups happen because of stress, weather, overexertion, and unfortunately, sometimes thereās no reason at all.ā
Click Here to Visit the Store and find Much More….
17. āFeeling alone. I have found a great online community, and I cherish the couple understanding friends I have.ā
For More Information Related Fibromyalgia Visit below sites:
References:
Fibromyalgia Contact Us Directly
Click here to Contact us Directly on Inbox
Fibro Women Blogs
Click here to Get the latest Fibro Women Updates
Click here to Get the latest Fibromyalgia Caring Updates
Click here to Get the latest Women with Fibromyalgia Updates
Click here to Get the latest Chronically Ill Updates
Chronic Woman Blogs
Click here to Get the latest Chronic Woman Updates
Click here to Get the latest Fibro Mom Blog Updates
Click here to Get the latest Fibromyalgia Home Updates
Click here to Get the latest Fibromyalgia Journey Updates
Click here to Get the latest Fibromyalgia Resources Updates
Chronic Illness Blogs
Click here to Get the latest Chronic illness Updates
Click here to Get the latest Chronic Cure Updates
Click here to Get the latest Chronic Health Updates
Click here to Get the latest Fibro Warrior Updates
Click here to Get the latest Fibromyalgia Awareness Updates
Official Fibromyalgia Blogs
Click here to Get the latest Healthizes Updates
Click here to Get the latest Fibromyalgia Center Updates
Click here to Get the latest Fibromyalgia Updates
Click here to Get the latest Chronic Illness updates
Fibromyalgia Stores
Click here to Visit Fibromyalgia Store
Click here to Visit Disability Store
Click here to Visit Fibromyalgia Shop
Click here to Visit Fibromyalgia Showroom
Fibromyalgia Social
Click here to Visit Fibromyalgia Facebook Page
Click here to Visit Fibromyalgia Facebook Group
Click here to Visit Fibromyalgia Instagram Page
Click here to Visit Fibromyalgia Tumblr Page
Click here to Visit Fibromyalgia Youtube Channel
Click here to Visit Fibromyalgia Tiktok Page
Click here to Visit Fibromyalgia Twitter Page